Scottish rugby legend and MND fundraiser
Former Titans star Chris Johnson has revealed he has ALS, diagnosed in 2025. He says he chose to fight, using a speech device, and is sharing his journey publicly. The announcement comes after his successful NFL career, including a 2,006-yard season in 2009.
Jai Arrow has been granted special NRL dispensation to appear in two final Rabbitohs games as he battles motor neurone disease, marking his 99th and 100th NRL appearances for the club and his 180th overall.
The My Name 5 Doddie Foundation has launched RACE to Diagnose, the UK’s first programme to guide clinicians in identifying early signs of motor neurone disease (MND). It aims to shorten time to diagnosis, enable earlier access to treatments, and provide guidance on urgent referrals and patient support. Messages from the foundation and a patient advocate emphasise the personal impact of delayed diagnosis.